Monday, November 30, 2009


Hope everyone had a good Thanksgiving with lots of food, lots of laughter and of course, lots of pictures. I'm grateful for many things in my life, most of all is my health, my family (even though they annoy me at times) and all my friends old and new. You are who make me strive to be better each day.

I thank you for that.

As Christmas is now fastly approaching, I'm busily getting cards ready, getting gifts bought, then i can relax. Oh, i keep 'forgetting' I need to make everyone a calendar.

I'm still keeping up at gym. Still pulling to do the 5k at the Marathon next May. I asked my brother-in-law if he'd run/walk with me as he has my name - and its really all i want. That would be the best gift i could receive. He said he'd do it, but I may need to keep reminding him. LOL

Take care and happy holidays!

Friday, October 23, 2009

I'm still here

Sorry for the delay in updates. I'm still keeping up with walking and going to gym. Although I have slowed down a little, and I'm trying new things. It has been a busy month.

My internet decided to crash Sunday the 18th, so I finally got a new modem Thursday. I didn't realize how much I do on the internet until I'm without it.

I went to gym Tues and Wed of this week and Wed I was able to walk 2 miles. I know I'll be able to do the 5k with no problem. Its so much easier having someone walk with me. I'm excited for it. i saw one of my doctors last week and she and her nurse were over-joyed I accomplished this. It warms my heart and makes me strive to be better.

We have had a rather crummy October. Cool and rainy. Today we actually had sun so I took a brief walk to the cookie shop - next to wear i get my hair done.

All in all everything is going well. Knock on wood!
Enjoy the weekend,

Tuesday, October 6, 2009


I don't know what I was thinking this morning when I took my morning meds - I obviously wasn't. I accidently took one of my pills I take at night for headaches and I take it at night because it makes me tired. My Doctor told me to make sure you don't do anything after taking this, just go to bed.

Well, i accidently took one this morning. They are the same color as my other pills. I wasn't sure though. I took a shower and thought I'd wake up. Still was tired but I did go to gym - call my crazy! I did walk a mile but was really dragging. I figured out which pill I took at gym, as my mouth was really dry. So ah ha - I did take it! Mystry solved!! I did some other exercises, kind of kept busy moving around. Then I decided to be done early - 15 minutes early. So I was waiting for my dad to pick me up and about 11:30 the door lady asked if she should call. I said that's ok, I'm sure he'll be here. Well by twenty to noon, i did have her call and he FORGOT me!! I forgave him after he bought me two juicy cheeseburgers!! The one day I'm done early and the day I'm super tired, he forgets me. I'll have to give him crap about this for awhile. I guess we both had memory lapses today!!

I did go to gym last Thursday but didn't document it. I had a horrible headache all week and so I only did 20 laps that day. I'll get back in the groove again. The 2 mile walk was just a beginning!

Hope everyone is doing well.

Tuesday, September 29, 2009

Happy Days

I think I'm still floating on Cloud 9! I just did 15 laps today and changed it up a little and did some other exercises.
I feel great after the Cancer Walk - maybe a little emotionally exhausted, but I feel great. I do have a 'little' blister on the instep of my foot. Oopsie!

Its a crisp cool day out, but I'm going to keep on walking. I must admit the crowd issue at the Marathon has me a bit worried. But once I get through that and onto walking, I'll be fine. I can't wait to see how much stronger I'll get by May!

Keeping on.
Thanks everyone for your support! :>)

Saturday, September 26, 2009


I cannot even begin to tell you what an awe inspiring walk this was. Not only was I walking for those who have cancer, for those who are survivors and for those who lost their battle. I was also walking for myself to prove to myself that YES I can do this. It was exciting, exhilarating, and quite emotional especially as we crossed the finished line running and having people cheer us on. I had never experienced anything like it - it was quite rewarding! I got many high-five, many hugs, many GO JOEY's! I'm proud of myself!

Although I was nervous as hell when we first got there, i didn't know what to expect. i was excited but more nervous. Charlotte could read my face. When we registered, we got a ticket then had to stand in line for our shirts. I knew I couldn't, so Charlotte said I could sit down and she'd grab them. Then we took a few photos of me being nervous. Then I said i better go to the bathroom. I couldn't go - i was so nervous.

Once we got started, I was doing fine. I wanted to keep ahead of the little boy with his big wheel!

But he got ahead of us. I ran a little - Charlotte had to keep up with me!! LOL

I just tried to maintain - keep my focuse and FINISH. And that I did! Go Joey GO!!!

We didn't even bring the camera on the walk, others had theirs, but i just thought it would be a pain. Charlotte did carry my machine in her backpack in case something happened and i needed to say what was wrong. Thank you Charlotte & thank you for walking with me!!

We hung out a little after and took pictures, watched the runners come in - they ran the 10K!

It will be something I'd like to try again. I am nervous for the actual marathon, knowing how many people were here and knowing there will literally be thousands more at the Marathon. I'll need to round up a few people to walk with me. I know I can do this.

Thank you to Southpoint for all your support and to Charlotte - thank you for making this possible. Making me believe I could do this (even though you wanted to call my dad - if something happened!!)

Yeah I did it, I'm gonna keep on moving!!
Photo above was before the walk holding the t-shirt we got. (One of them) and me looking like what in the hell have I gotten myself into!! I'm so glad I did this, it was worth all the nervousness!

Friday, September 25, 2009

Beautiful Morning

I went for a walk this morning. Gearing up for the 'big' walk tomorrow morning. My goal on this walk was to stay focused and to NOT stop and take pictures! It was kind of funny as I was walking by homes and apartment buildings how I could smell bacon frying!! Made me want to have a big juicy cheeseburger!

I did stop for less than a minute on a bench that I usually sit on to take pictures. This time I stretched each leg and sat for 10 seconds or so and off I went. I kept saying in my head 'to keep on moving - you can do this'. I went the same route as last time, except last time I cut through one of the parking lots.

I stayed focused and kept my head up and kept going. Made it in about 40 minutes. I'm still unsure how far it is, but I felt good after. Doing laundry now.

Will blog tomorrow after the big day!

Peace out!

Thursday, September 24, 2009

Two more days

Saturday is the 'big' Roger Maris Cancer Walk. I say 'big', because to me I'm sure it will seem big as this will be my first one EVER.
I must admit that I am a bit nervous just because I don't really know what to expect. Charlotte & I walked part of the race and at first I was concerned that we'd all be crowded on the sidewalk, but she said they open the streets up for this; which made me feel more at ease. I really hope there isn't a lot of baby strollers, dogs on leashes, that I might trip over! Charlotte asked for my dads number in case something happened to me. If anything happens to me - we will call 911! I highly doubt anything will happen but she said she just wanted to have a plan of action. The only thing I foresee happening is i may have to sit down for a minute or so. I'll just see how I do. I am not concerned about time at this time, just want to complete. Although, I'd rather not come in last. I was getting very warm today and asked Charlotte why she isn't sweating and she said it may be because this is a little slower pace than what she does when she walks. So I'll just have to kick it up a notch and show her who is boss!! Ah-hahaha!! We saw so many beautiful flowers on the way. I can't let that distract me!! So there will be no photo ops on the route. I wanna keep going. Thanks Tiffany for saying you would take pics if you were here. (she lives in Michigan)!
We'll get some before and after!

So before we walked outside, i walked 5 laps to warm me up - then we walked. Then I just did stretches, the Bose; which is easier now. Kind of taking it easy. Don't want to stress out but I also want to maintain. I'll try to get out and walk tomorrow morning before it rains.

One step, two I come!
Have a good day and I appreciate everyone's support! :)

Tuesday, September 22, 2009

I'm doing doing this

This morning I got up at 6am! I don't know what I was thinking but I knew if I went back to bed for an hour, that I'd fall back to sleep and couldn't get up. Then I'd be rushing. So I get up at 6 and am moving so slow and my eyes would not stay open. It was CRAZY! I had them closed when I was eating and woke up a little after my shower. It was funny trying to keep eyes open while putting on make-up; like i really needed it going to gym! Oh well.

I was better once it was time to go - i didn't have to hold my eyes open. Its a gloomy rainy day, so I'm blaming it on weather. Started out doing a few leg stretches at gym, then off i went. I did THIRTY laps..yeah THIRTY!! I did stop at the 20 lap just for a minute. That was all I needed and it was like I got a bolt of energy. I did TEN more (30 total) and I felt great!! I think Lisa S. joined me on the last 6.

So I am pretty sure I can do the walk Saturday - it's 2 miles. I'm a little nervous as I don't know what to expect. I have never done anything like this but it will give me the experience for the 5K next May. Charlotte will be with me, so that eases my mind! I'm trying to figure out how I can get someone to take pictures! LOL

I then went (after gym) to have a flu shot. There was a short line and this is where I have trouble. I can't stand in a line or stand to fill out forms. This very kind lady said she would hold my spot in line while i sat. Which was so sweet. By the time i got to the place you register, i couldn't stand, so just kneeled on floor; which concerns everyone. They think i'm going down for the big one. A nice nurse helped me up and to where i would get my shot (only about 20 steps) and after I was done, i got up like nothing ever happened. See this is the frustrating part. I don't know if this is the dystonia causing me to not stand or what. I'm ok if I keep going though.
I just do the best I can.

Here's a quote a friend, Lisa M, sent me.
Your attitude towards life defines not who you are - but the quality of life you are after!
Peace out - til next time!

Thursday, September 17, 2009

Left Foot, Right Foot!!

Moving along and doing well. I finished 24 laps at gym; which is 2 miles!! YIPPEE!!

I could tell i was getting fatigued towards end. I sat down and had my little snack (spice drops); which the therapists laugh at!! I could bring in a dish of ice-cream!! After I sat awhile, i did more jumping. That gets my heart moving. I have never sweated so much since i started all this walking. I feel it is so good for me. I may not be the best, or the faster, but I AM DOING IT. i even ran a little. It's funny when people start to chase me!!

After gym I picked up 2 cheeseburgers w/ mustard, ketchup, mayo & pickles on it! Something seems wrong about that - working out then having fast food!! I did eat a fresh tomato from my building owner with it, so it was a partially healthy lunch!!

Have a splendid day. Never give up on dreams.

Above lovely photo is from my big walk yesterday!

Wednesday, September 16, 2009

Big walk

I got up this morning and ventured out on a walk. I went the same way i went before except this time I added on a few more blocks. I am unsure how far i walked but guessing closer to 2 - 2.5 mil!! It was such a pretty day out and i want to get out as much as possible as i know days like these won't last long.

Whew!! I'm going to make this 2 mile Cancer walk - rain or shine!

Enjoy your evening.

Tuesday, September 15, 2009

Pulling along

Today I started out and did ten laps. I just wasn't feeling it - probably not walking as much over weekend didn't help. So I took a break, did some jumping and other exercises. Took a short break and did 15. I felt much better the second time around. So now I just have to keep this up for the Cancer walk.

I went in for my monthly massage - massage really helps my muscles. I'm like a zombie when she's done and I never want it to end. I walked home and woke up. It is a nice summer day, and it's September. Where was this weather in August! Oh well, enjoying it while it lasts.

Enjoy your day! And no fighting!

Thursday, September 10, 2009

I did it!!!

Woo-hoo! I walked 24 laps in a row - no stopping! Just kept on plugging along. Charlotte & Lisa joined me on about lap 16 and they walked w/ me while talking about Wednesday nights shows. It was fun!
Then I finished my TWENTY-FOUR laps which by the way equals 2 miles and it's the furthest I have gone. Funny thing is I felt I could have kept on going. Sweet! I'm pumped up.
I went to the grocery store after and feel good.

Hope everyone is doing well.
Enjoy the day! :)

Wednesday, September 9, 2009

Better day

I knew I needed rest from the big weekend and it did feel good to sleep in a little this morning. I got up ate breakfast and decided I was going to go for a walk. I pulled on some clothes, brushed teeth and put on a hat and away I went. Wasn't sure how far I was going, but went as far as I could. I had to go to the bathroom so bad mid way. Ufta! I did stop once and just wrote down the route I had gone thus far. Then I took a couple pictures just to prove i indeed was walking. Then I saw a bench in front of the Post Office, it was closer to the street (the bench) then I sat and watched cars drive by - busy street and took more photos. Then I proceeded on. I was gone about 45 minutes.
I must have got my energy from visiting w/ Cheri. She's all pumped up and I think her energy rubbed off on me. Yeah!! Thanks Cheri.

The above photo was taken on one of my stops.
Enjoy the day....

Tuesday, September 8, 2009

Not so good

Today I was very tired from the long weekend so was wondering how I would do. I did 17 laps and had 2 sit down on laps 6 and 7. I think part of it was fatigue and the other part was the weather. Kind of humid outside. I wasn't up to my normal walking and I could tell as I was walking that it seemed sloppier. So I decided to rest and then proceeded on. I had my stretch today and felt better. Charlotte always makes me feel better.

I registered for the Cancer Walk - I need to call to make sure I did it right.

Tomorrow is a new day.

Have a great day all!

Thursday, September 3, 2009

I'm going to make this

I did TWENTY laps all in a row - no stopping! I could have done 4 more to make it 2 miles!! I'll keep trying.
After my break, I did some other machines. Charlotte said its good to switch to keep up endurance. I then tried walking backwards - not such a grand idea but it was fun to try, tried walking sideways, tried skipping - I forgot how...can u believe that? I felt like i was going to trip. Did some jumping!! FUN! Then Charlotte had me try this wobbly round thing that I stand on. I didn't like it at all. Holy stressful. I want to try it again though. My legs were totally shaking. I think i have done this before but it's been awhile. Keep on practicing.

Good work-out.
I'm still talking about dystonia. I think I always will. It's something i'm passionate about as well as my walking and of course photography!!

Thats about it. Kind of tired. I'm guessing it's allergies.
Have a great Labor Day weekend everyone!!

Tuesday, September 1, 2009

Feeling good

I brought in some Dystonia Dialogue magazine's to pass out to the PT dept, Sports Medicine, and one extra one. I even gave one to the door lady. I'm on page 19, just a photo of me in my DMRF shirt. Trying to spread awareness; which is harder than I thought.

I walked 17 laps at first and felt good. Came back to 'my' little blue mat and had a snack, did some stretches. Was also looking over the Roger Maris Cancer walk brochure Charlotte gave me for registration. Getting exciting. Her reassurance of knowing she'll be there makes me feel 100% better. This is my first walk like this, so it is a rather big deal. I need practice walking in big crowds. Not sure how big this will be. And it will be nice everyone will be walking in same direction!! Unlike crowded malls! Yuck!

I then did some more jumping - running and jumping. It took me awhile to figure that out last week. But I did it, I think Charlotte was impressed!! Next I'll try a cartwheel! LOL

Then I walked 15 more times - so all in all it was a good workout!!

Hope everyone is doing well! Until next time....

Thursday, August 27, 2009

Having FUN

I love going to gym because I get so much support from everyone. Charlotte really knows how to calm my worries and fears. I know she is in my corner along w/ my new Twitter friends, Shutterfly friends, and just my friends in general. This is all new to my parents so I can now understand their fears - after talking with Charlotte. This is something I WANT to do. I want to get stronger and I feel I am everyday. I know when to stop, and I know when I can keep going.

I need to do more walking outside. Gotta get my butt off this computer and walk outside more.

They'll be happy for me once they see I CAN do this.

Today I did 15 laps and felt fine. Charlotte thought the reason my outer thighs were hurting Tuesday, was because I wasn't used to this. She said I'm probably building muscle! Woo-hoo!

I LOVE jumping pictures and I got a great one of my niece & nephew and their cousins. I just think its a fun look. Well, I thought I'd try...LOL!! I had a blast jumping on the mini trampoline trying to see if I could get my knees up as high as my niece Abby. First of all, she's 6 and I'm 41! I still wanted to try. So Charlotte gets my camera and starts taking pictures. It was fun to do but I just couldn't get my knees up super high. Guess I shouldn't be so hard on myself as this was my first time. One day I'll jump super-high.

So the photo above is the one we got. I'll have to tell her to keep snapping next time. I'll practice more next week. Ufta as fun as that is, it is a HUGE work-out. But I can't wait to try again!!!

Have a good day and try jumping - its fun!!

Tuesday, August 25, 2009

Feeling a bit worried

Hi all,

I did fine walking 12 laps when I got to gym. I took about a 10-15 min break then went on and did SEVENTEEN more! Yeah, 17!!! Towards about the 15th lap, both my outer thighs started to hurt. So I stopped. I think I could have kept going had I not had that pain. It wasn't a terrible pain, but I know if I kept going - it might get as bad as when I did the Streetfair. I just hope I can get stronger and increase my pace before the Cancer Walk end of Sept. It's 2 miles.

So I'll just have to keep it at this pace, and see if the pain lessens.

Thats about it for today. Walking my niece (6) to get her pedicare and nails painted before school starts tomorrow. We are going later this afternoon.

Keep on fighting!

Thursday, August 20, 2009

I can do this.

I was/am having apprehension doing the Roger Maris Cancer Walk Sept 26th. I will do this whether I have to sit down half way for a bit and then keep on going. I can only do my best and I'm hoping I can pull this off. I need to start walking EVERY day - maybe not a mile, but just some walking on days i can't make it to gym. Once I get on this computer doing all my Shutterfly stuff, I can't seem to get my butt off. So I need to make a point to do this. Even if its walking my hallways in my building.

Charlotte is so easy to talk to and she is so compassionate and so encouraging. I LOVE going to gym, I have never seen so many nods of approval, or people telling me how good I'm doing. That is a major help! I just love it. Charlotte will listen to any gripe or concern I have and come up w/ a solution - like we can sit down in the middle of the walk or if you don't feel like u can finish she said she'd get her car. Thank u Charlotte for your encouragement. I do feel I walk better when i walk w/ someone. So I just have to put it in my mind that I CAN do this and I will finish.

This is my first walk (2mil) and I really want to do it. It would be good for me to start w/ these 'smaller' events. I just gotta keep walking so I can do 24 at once. I don't need to push it, just slowly start progressing.

I walked 12 laps right away at gym. I did some jogging too and that always whips me out. I feel my legs getting stronger so I must be doing something right. Then I had my stretch with Charlotte which is my most favorite besides my massages! I feel so relaxed, its awesome being stretched and pulled, pressed on!! Then I wanted to try for 12 more as my ride was coming at 5 after 11. It was now 10:40ish am - did I do it? Why yes I did!

Then I walked down to lobby and the door lady Shirley said I look exhausted! I then went home, did a little computer work, had a quick lunch and walked to my next appointment. I love living close enough where I can walk - but the dreaded winter is coming and I'm not good on ice.

As I was leaving, I heard the Flying Blue Angels practicing in the sky. So I sat down HOPING to get a photo but they move too darn fast. So then I was taking pictures of the clouds and ME - imagine that!! The above photo is of me waiting for the planes to go over. I just wasn't fast enough. So while I was sitting there, close to the entrance of the grocery store, my dad of all people pulls in and asks what I'm doing!! I tried to get the planes but it was next to impossible, so I found my dad in the store and walked around with him.

Then I went home and have been trying to brainstorm w/ Tammy from the Dystonia foundation on how I can spread the word about Dystonia in my area. It is very important to me that people learn about this as it is so rare and seems rather foreign; especially in my area. I think people want to learn about it. I just don't know how to get it out there. I'm trying to raise money for Dystonia, trying to help those who are having a harder time. Kind of like a support person. So if you have questions or how I can spread the word about Dystonia - let me know.

Enjoy your day and remember to laugh every day!

Tuesday, August 18, 2009


I walked 12 laps = 1 mile and I could feel I was a bit tight but I did ok. Thats what I get for not doing much walking this weekend. It was icky and raining so I didn't get to walk back and forth like I usually do at the lakes.

I rested and visited a little w/ Charlotte. Then I said i was going to walk 12 more and she was going for lunch. Well, as i was coming around the corner, i saw her w/ my camera taking pictures of ME. Most of them turned out dark and blurry - i must have been flying fast. LOL

There's one picture where I'm running towards her and my mouth is down to the floor. I forgot how big my mouth is! It cracks me up because i look like i was scared. We will have to try again sometime, doing our walking/running photo session. I'm not sure how far i walked since i kept running back and forth. I got a good workout and it was fun. We gotta make these fun or they'll just be hum-drum boring.

I am going to walk the Roger Maris Cancer walk end of Sept. Its 2 miles so I better get moving on doing 24 laps at once!!

Then i had to run a couple errands with my dad and we walked quite a bit. We were in one building and I said lets take the stairs - its only 3 flights down (or so I thought). I hate waiting for slow elevators. I think we went down 5 flights; sure seemed long. Then we had to go to a store because my phone ran out of minutes. This store is HUGE and its not my favorite but it will remain nameless so I don't offend anyone. I got a workout walking in the parking lot and to the back of the store. We did have a very nice young lady helping us; so that made it nicer! On the way in, i saw a car w/ my sisters name on the license plate, so I said to myself if that car is still there when we leave, I'm taking a photo of the license to email my sister!! It was, so I ran to the car and took 3 photos. What a nerd!

Thats about it. Photo above is an awful one of me, but i think its funny. I look scared out of my mind with my eyes popped out and mouth WIDE open. Next time i will close mouth. Its so hard when i'm laughing so much.

Enjoy your day.

Thursday, August 13, 2009

Dystonia Awareness

Hello everyone. As most of you know or may not know, at the age of 10 1/2, I got sick. It wasn't until nearly 18 years later that I found a neurologist who took my case to heart. She diagnosed me with dystonia, a rare neurological movement disorder. I have been doing well - One of my favorite mottos - "It is what it is". I did have a pretty hard time in 2006-2007. After trying several medicines, I found one that is actually helping me. I still have troubles now and then but overall I'm doing well. Positive energy helps.

Neither my family nor I had ever heard anything about dystonia until I was diagnosed. We'd do research online, get information from my doctors and we would learn what we could.

Then on July 22nd 2009, my eyes were opened during Dystonia Twitter Awareness Day. I didn't know what to say or even where to begin. I knew many people had it but didn't know to what degree until I got to visit with them via Twitter. It was very inspiring to meet others with dystonia. Some have it the same as I do; some are much worse and in chronic pain 24/7. It was eye-opening for me and quite interesting. What was really reiterated that day - we may have dystonia, but dystonia does not have us - and it doesn't have me.

I've decided to do something to not only raise awareness but to also help. I've started to learn more about dystonia through the Dystonia Dialogue, sharing information about dystonia, answering questions people may ask when they see me in my DMRF tshirt. I've also started a blog and have begun to actively talk about dystonia on Twitter and Facebook. Why am I doing all of this? To help people become more aware of dystonia.

I want to ask you to consider making a contribution in support of the Dystonia Medical Research Foundation (DMRF). They do a lot for the dystonia community.

Hope this link opens for you. If not, let me know. Click here:

Please don't feel obligated to send money - just trying to raise awareness and help DMRF. Feel free to pass this on to others if you wish.

If you choose to send money either by check or credit card, know you are indeed helping the DMRF. With your help and support, maybe one day the word 'dystonia' won't be so foreign.
Thank you for your time,
Joey Tehle


Today at gym I didn't have my side-kick Jack w/ me. Maybe next week before they start school. Anyway, I started out with a few warm-up stretches, then proceeded to walk and walk! I did 13 laps at first; a mile plus 1! Then took a break and walked 15!!! Charlotte joined me for the last 2. I could have gone more i think, but I was running out of time. I feel I walk so much better and like I'm able to keep going w/ someone beside me.

I want to walk the Roger Maris walk on Sept 26th. Charlotte thought it might be wise if I got practice doing smaller walks first before jumping into the BIG one! Charlotte said she wants to walk w/ me. How cool is that!

The only problem is my nephew's 14th bday is the 28th and we usually go down the weekend before; which is the weekend of the walk!! I'd love to be at David's to take pictures but I really want to do this walk. I think it would be good practice. Hopefully my family won't be too mad at me if I skip one birthday! This walking is very important to me.

Be well & stay positive!

Tuesday, August 11, 2009

I'm a movin' movin'!

I went to gym with my nephew Jack. He tried to walk with me. I think we did 4 laps then he sat in a chair and when I came back around again he finished the 8 with me! Way to go Jack!! Thats a lot for an 8.5 year old who isn't really used to this. Then we came back and sat on the blue mat for awhile and played catch with the big work-out balls. I was trying to think of things we could do so he wouldn't be so bored. So we put our feet together and thought it would be fun to pull each other...well his arms were too short so I got one of those thera-bands and we were having fun pulling each other - then BAM! it busted - oops! Jack was laughing then got embarassed. I think he thought he was in trouble. Everyone said hi to him; which he liked!

I wanted to walk some more but Jack didn't feel up to it so he sat on the blue mat and watched people and as I walked by, I'd wave at him!! About the 10th lap he joined me and we even ran a little. He's a fast one. He was whipping Auntie's butt!! Then we came back and rested a bit before we left and on the way out Charlotte saw us so we went in her office and visited a bit. She offered him almonds and he liked them!! Who knew, Jack is a pretty picker eater! That was funny.

I then went home, did some computer stuff and had lunch. Then I walked to my monthly massage!! It feels so good. The hour goes by too fast. Massages are so good on my muscles; like my stretches. I have heard others who have dystonia say that they really help them too. I'm just like a zombie when she's done.
Be well.

Thursday, August 6, 2009

Stronger & stronger

Hi everyone,

Today I got to gym a little later than normal -I actually overslept!! Not that I have a set time I need to be at gym. Just the earlier, the better.

I did some quick leg stretches and then off i went. I didn't time myself - thought I'd wait til next week. I didn't do any running. Trying to keep the foot doing well. Maybe my left foot is just getting fatter!! Seriously, I am feeling better and was able to walk a mile; 12 laps. Then I rested and had my stretch w/ Charlotte. I have 3 scheduled this month! Yeah!! It feels so good to have someone else stretch u. I just love it. After my stretch, I walked another 12 laps. So 2 miles total. Now i have to work on doing two miles all at once! Ufta.

A special thank you to Lisa M - my Shutterfly friend- for saying you'd walk w/ me. Too bad TX and ND are so far apart! That was very sweet of you.

Still checking out other walks in my area - or maybe I'll fly to TX to walk w/ Lisa!! Its hotter than a dickens out there. We'd both probably have heat strokes.

My niece Abby & nephew Jack both stayed over-night Tuesday. It was fun to have them over but I was sure tired this morning. We got up Wed and I took them to a playground thats about 2.5 blocks away. They thought it was fun. It was more like a jungle-gym. After being there for over an hour, they were getting sick of each other so wanted to head back. Since they don't seem to like any food I have, their mom picked them up; she was going to around noon anyway. She had a stressful morning w/ Madeline, her two year ols. I thought I was giving her a break but I think Madeline needed to be here too. Too bad she isn't potty trained. Then she could. She is sweet even though she is busy busy.

So all in all I'm plugging along. Trying to recruit people to walk with me

Hope you all are good and happy. I have a bit of a headache so I'm laying down for a bit after I finish this. Be well.
Above photo is of Abby in the jungle gym playground. Look at those leg muscles. Impressive for a 6 year old. Enjoy!!

Tuesday, August 4, 2009

Back on!!

My foot feels fine so I asked one of my trainers, Charlotte, about it, and she said its hard to tell. I think i was just looking for confirmation that I could start walking again. I did the rower, and some strength machines, and then I did 13 laps; which is a mile plus 1! Pretty good since I took last week easy.

Charlotte suggested I try other walks within the community. Lisa, another trainer, said there are all kinds. I guess i never knew or never paid much attention to it. I looked online today and found a few. Some don't have the registration up, yet. Charlotte said that it might be a good idea to try some of these other walks instead of jumping into the big Marathon. It will give me a feel for the atmosphere etc. So, I'll see if i can find any and maybe I can round up some people to walk w/ me!!

The above photo is one my niece took of me on Thursday while they came to the gym w/ me. I'm on the rower.

Enjoy your day and believe in the impossible!

Friday, July 31, 2009

Busy days

On Thursday I went to gym w/ my niece Abby (6) & nephew Jack (8.5). I thought they'd be bored out of their minds but I also thought it would be fun for them to see what I do while at gym. Since I'm supposed to take it easy, I knew I wouldn't be walking 12 laps so figured it would just be a simple work-out. They thought the rower was funny. Abby took a couple of pictures (bad angles!) and then they watched me do some of the strength machines. I think they felt pretty special how a few people came up to them and were visiting w/ them about things they like to do etc. That was cool! I also asked one of my trainers Kendall, if I could walk 3 laps and he said as long as your foot feels ok - but no running!! So the kids and I walked 3 laps and they were tired after the 3rd lap! Then I did some stretches and they were on a couple machines, just trying them out. They kept asking if they'd get in trouble and I told them I'm watching them so everything should be ok, just be careful.

After gym, Abby came to my place w/ the intent of staying over-night as Friday (today) we had pedicure appointments. So I thought we could just walk over in the morning. After pizza and a treat, she wanted a bubble bath w/ TONS of bubbles. It was pretty cute. Then she had a bit of a melt-down and missed her mom. Long story short, my sister came to get her and Jack stayed over instead. We watched one of his movies; which meant Auntie fell asleep. He was laughing though.

Friday morning I got up and got ready and when the disposal ran, he woke up asking 'what's that noise'. He hears everything and there are all kinds of odd noises in my place which I'm used to now. So we walked to the Salon and for some reason I was having trouble. We just had to cross the street again and we'd be there (it's about 2.5 blocks from my place). So I had to sit on the grass a little bit; which concerned Jack. I said I'm ok - my legs are giving me a bit of trouble. He helped me up as best he could and we made it to the salon. We were a bit early so I was able to sit and I thanked Jack for helping me. I don't know why that came on. I guess my muscles are bound to not cooperate from time to time.

So Traci (my sister) and Abby arrived at the salon and I told her I'd call if we need a ride. So Jack went w/ his mom and Abby and I went back to get our Pedicures. It was Abby's first one and she loved it. She even got her nails done. Thanks Rita! We walked back to my place and I had no problems.

All in all it was a good couple days. Busy but good.

My foot is still a bit swollen but seems better. I'll get it checked next week.

Above photo is of my niece & I soaking our feet!
Have a good weekend everyone.

Tuesday, July 28, 2009


When I started this journey, I went at it and was very excited. I kept improving every week. It was inspiring to see myself progress in such a way. I did go at it kind of strong. I felt GREAT, so just kept on going. If I didn't feel well, then I would have stopped. It was encouraging feeling all the support at gym and everywhere. Since this is VERY new to me, I should have taken it slower.

Sunday when I put on my sandals I thought this is strange, why does my left shoe feel so much tighter. Once I looked at my foot, it was obvious it was swollen, compared to the right foot. My feet do turn in at the ankles. So I showed my parents and my mom thought it was a stress-fracture. She is concerned about me even attempting this. So I have been keeping my foot elevated at night. I said I'd have someone at gym check it Tuesday.

I saw Al, another Exercise Physiologist Trainer, and I asked if he had a second. He looked at my foot and said it is swollen. He moved it around to see if it caused any pain; which it didn't. He said w/ a stress fracture you'd be in pain especially at night. He said to just take it eay; which bummed me out but I know it is for the best. I said can I do any laps and he said only two, and I said how about 5!! He said you better stick w/ two. So I did two then did other machines and different exercises. As i was leaving Charlotte gave me a bag of ice and they (she and Al) both said I should ice it two times a day 20-30 minutes. Aleve/Ibprofen will also reduce the swelling.

My dad said he has a couple of those frozen ice packets. So when i got home, I took two Ibprofen and laid down with my foot elevated and the ice pack on. I was only supposed to have it on no longer than 30 min due to possible frostbite. i had a towel under the ice and I zonked right out; well after about 15 min. I can never lay on my couch without dozing off. I'll put ice on it again this evening.

When I got home, I saw a new flower popping up on my Gerbera daisy plant. The others had all petered out. And a friend left me flowers from her little girl (6) because I bought her bubbles at the grocery store. Flowers make me happy! Something new to photograph.

Photo above is of the bird I captured on my deck!! He didn't move even when I opened the patio!

Just a mild set back. I will keep at this and I will FINISH even if I'm last! For now, I'll just take care of this foot so it doesn't get worse.

Thursday, July 23, 2009


First I have to blog about yesterday. Yesterday was Dystonia Twitter Awareness Day - so if you were on Twitter you were asked to help spread the word about Dystonia which is a rare disorder that not many are aware of. I wasn't sure what to say. Then I saw all these 'tweets' (Twitter talk) coming in from people w/ Dystonia and if you typed in #dystonia in the search box, you'd see all kinds of responses. I was literally blown away! I knew people had it but I never knew how many. I have had this 31 years, so it is what it is. I just try to do my best and keep plugging along. I even changed my staus on Facebook to say if anyone is on Twitter and has questions about Dystonia to please Twitter and join in conversation. A couple people posted comments on my facebook wall asking what is Dystonia, one said she never knew they had a name for my condition. Then i got a message in my facebook inbox from someone asking how i know about Dystonia - she asked if I had it. Then said she too had it!!! So since I know this person we have a lot to talk about!! Our Dystonia's are different. It's so nice to connect w/ people who actually know something of what you are going through. Of course every person is different as is every person w/ Dystonia. I never heard much of anything about this rare disorder, thanks to Twitter we can spread the word!!

Today at gym I did a couple weight machines then started on my walking. My first lap I did 12 laps in 18 min - with some running inbetween. Then I got my wonderful stretch from Charlotte (thanks Charlotte) - very relaxing then I was ready to go at it again and this time I did TWELVE more in 17 40 min! So I did TWO miles again!!! woo-hoo!! I did pretty well for not feeling 100%!

So thats my news for the week. Enjoy your weekend. I appreciate all my new followers - some of you I met on Twitter. Thanks everyone for your support

Tuesday, July 21, 2009

Staying strong

I lost all the blogs I was following. I wonder how that happened? Ugh!

Anyway, my hip is feeling better. It was still sore by Saturday but took it easy the rest of the weekend.
At gym today I got there a little later than normal and did a few warm-up stretches then I started walking. I know I need to get outside more and walk. Its much easier to keep track of how far I have gone at the gym, as I know how far a mile is. So today I did 12 laps AGAIN and felt good at 18 52 min. Then I took a break and visited and walked another 12 this time in 19 min. I was getting a side cramp so that may have slowed me down. But still another 2 miles. I'm breaking it up, but it seems to work better for me to have a break in-between. I'll keep at the 2 miles and one day I'll be able to walk 24 at once - gradually increasing that is!!
Thanks everyone for the support. I can't thank you enough.
Until next time....
Stay strong!

Thursday, July 16, 2009


I must say I'm quite impressed with myself. I was feeling good and strong. At gym, I kept making those laps - I passed the 10th lap and wanted to do two more then I'd be at a mile. Woo-hoo!! Did I do it? YES I DID. I felt great after. So I walked a mile in 23 minutes. Not too shabby. Then I took a break, did some stretches and had a little snack. I got ready to do my next laps and said I'm going to try for 12 more! And I DID IT in 18 min! YEAH, 2 miles!!! Faster than my first 12 - I ran a little too. Now this is not a regular gym track, it's kind of going around the gym and down the hall and round and round I go. I felt REALLY good after. While i was walking a lot people were saying I'm walking so good and asking how many laps I have done! It's encouraging seeing the support from the trainers, PT staff and other gym members. I was elated when I told my trainer Kendall I did TWO miles. He said it's not only physical but also mental. When you want something, there's nothing that can stop you from achieving this goal. He did tell me to keep taking it slow. To not rush...I was feeling good so wanted to continue. If I can keep this up and keep decreasing my time, then I can increase my laps in another week or 2.

Every year in July there is a StreetFair in Downtown Fargo. For the past few years i have avoided going just because it is sooooo crowded. People walking every way, they bring their pets, babies in strollers, etc. So it is hard to get around. I wanted to go this year and test out my crowd situation. My mom thought it was a bad idea. I know she was just worried, but just because I had trouble in the past - doesn't mean i will this time. I just wanted to try and I had no fear of going, in fact I wanted to. My sister asked if i wanted to go and i said yes w/o hesitation. The Streetfair is just a fair in downtown Fargo spread across several blocks with craft and food vendors all over. I love to go just to people watch and take pictures (I only got 2 which i haven't uploaded). I thought i did pretty well walking, I did want to sit for awhile and just people watch for a bit, but since it was so busy and crowded my sister didn't know if she would be able to find me again. So I walked and walked w/ her. I did have to sit on curbs or wherever I found a seat if she was looking at something. If I stood by the vendor, then 10 people would be surrounded by me and I couldn't get out. So I just chose to keep on moving and sitting whenever possible. I think we were out there at least an hour an half, pretty close to 2 hours. Towards the end, my right hip was really hurting and I had a shooting pain all the way down to my foot. I would limp when i walked. I was in pain and was holding on to my sisters arm.
By the time I got home, I was feeling much better. I have no idea how much we walked but it was a BIG day. Overall I am pleased w/ my accomplishments.
If I don't try then I'll never know if I can do something. With the Marathon, I realize there will be thousands of people but this will be different as everyone will be walking or running in the same direction. I'm assuming there won't be people stopping in the middle of the race to gab with a friend they haven't seen in years. I know the Marathon will be crowded but we will all be after the same goal. To finish. And that is what I plan to do.

I need to give a shout-out to all my Shutterfly Friends who have left such KIND messages on my Share Site: and on the Blog article I wrote for Shutterfly. I had no idea what to write about and Rachel (the coordinator) said how about writing about your Marathon Journey. I was timid at first as I didn't want them to 'see' me any different. I thought maybe this would be a good idea to share my story and give some information on Dystonia (I didn't talk about that in my article - they would have to read this) and their comments were so nice to read - to have that extra support from people I know only through the Internet. Shutterfly really is a great place. Thanks again everyone for believing in me!

My shutterfly link is below:

Tuesday, July 14, 2009

Doing well

It's such a dreary day in the FM area that I didn't really feel up to going to gym. But up and at up I was. I did a little bit of the rower then started walking. i did ten laps in 18 42 min, no stopping in-between just kept on going round and round I go. Then I took a break - did a few stretches and cooled down. Then I did TEN more in 15 min! So that was a little faster.

Yesterday I went to my neighbor's daughters to take pictures of her and her horse. It was so funny having these big horses come and sniff my hair. I was laughing so hard I could hardly stand it. I was sitting in a chair as I wanted to get photos of our family friend in the pasture w/ all the horses. I would sit for most of the photographing (I'm no pro at all - but am learning), but i had better leverage when I sat. I got in some exercising walking around the pasture and big property. Its a photographers dream!

Thats about it for now. Looks like it will be a downpour for my afternoon appointments, so I'm not sure I will be able to walk w/o getting drenched. I don't mind getting wet but since I just got over a cold, it may not be a good idea.

Have a great day & stay positive!

Thursday, July 9, 2009

Hanging in...

Yesterday I woke up and didn't feel the best. Was extremley tired and my throat started to hurt towards evening, kind of hard to swallow.

I wasn't sure I'd make it to gym, but even though I still was very tired, I decided to go. I heard exercise is good when one doesn't feel well.

I did a few weight machines and then started walking. I walked 10 laps - no breaks in between at 17.32 min - a little faster than Tuesday. Then I took a break - did 5 more at 8 35 min, another break then 5 more laps at 8 45. I was doing some sprints on that last one, don't know why my time was faster. I felt good while doing these so i just kept at it.

Once I got to my sisters, i started feeling crummy again. So I'm taking it easy tonight.

20 laps isn't too bad especially when I'm not feeling 100%!
Photo above is of nephews Jack (L) and David (R) tubing over the 4th!

Have a great night!

Tuesday, July 7, 2009

Walking & Walking

I hope everyone had a happy & safe 4th. We went to the ball game Fri night and that gave me a chance to test out walking in slow moving crowds at the end. I shuffled along pretty well, and when I found an open space I went for it! They also had a huge display of fire-works at the end.

We went to the lakes Sat morning and I got lots of walking in going back and forth to beach and camper. I don't think it was any big amounts. I wasn't sitting on my tush the whole weekend! LOL

The kids blew off fireworks at the beach but the mosquitoes were terrible. I did get some good photos of the moon though!

Today at gym I walked TEN laps alone. It took 20 min, but I'm not concerned about time. It's the fact that I'm doing this. My time will increase one day, I'm just doing what I can. I feel fine and could have kept going, but i knew i should stop and rest. Then Charlotte and i walked 5 more laps at 8 35 min. So 15 laps total. I keep increasing laps even though I said I should try to maintain the 13 laps. Then I got my stretch in by Charlotte, my favorite part!! I get very relaxed after!

Then I came home and watched Michael Jackson's memorial. I thought it was done very well w/ great respect to Michael. Some people could give a rip about all this media coverage. I think he deserved this. He was the King of Pop and i will never forget him or his music. I grew up w/ his music so it is a big part of my life. He was a bit odd, but nobody is perfect. This memorial showed him for the human he was.
I didn't mean to go on about Michael, just wanted to share my thoughts.

Be well all!

Thursday, July 2, 2009

Hanging in there!

Today I went to gym did my usual rower, then started the walking. I walked 5 laps on my own at 7 min 57 sec. I felt a bit stiff during this walk. But the good thing is I walked w/o sitting down. Charlotte said don't worry so much about the time, its the fact that you are doing it. Maybe the timer I was using is super fast!! LOL Then I rested a bit, did some stretches and some butt crunches. I forget the 'technical name'!! I then decided to try walking more. This time I went NINE more on my own at 18 min 45 sec. Kind of slow, but I shouldn't be so hard on myself. This is just my second week. I'm impressed I went that far w/o sitting down.

My doctor also suggested that I go walk the mall when it's super busy and crowded, like around Christmas!! Sounds like the perfect plan to get me used to crowds and having people stop in front of me etc. Hopefully by Holiday season, I'll be much stronger. So all in all I did 14 laps. Oops, I went one over!

I feel good though. I can for sure feel it in my legs that I worked out! Not used to getting sweaty at gym!

Congrats to Kendall & his wife on their new baby girl Jenna born June 28th. Their 5th daughter!

Happy 4th everyone! Be safe and have FUN!
Above photo is from Charlotte's garden.

Tuesday, June 30, 2009

Keeping Up!

Went to gym and did my rower than Charlotte was available to walk. So we walked 5x at 7:25 minutes - then 1 more time for a total of 9:04. I thnk we were stopped a few times to visit. Then we took about a 5-8 minute break. (I should keep track of this). Then we went 4x at 6:18 minutes - then another rest break. We then did 3 more times at 5:27 minutes. All that equals 13x around which is a mile plus!! Woo-hoo!! Then I went to my mat and did some stretches, had a little snack, and Eldon yelled at me through the cone and scared me!! Just when I got relaxed! Thanks Eldon. NOT! I then walked another 4-5 laps alone at 7:07 no sitting down in-between. I always lose track when I walk alone of how many laps i do.
I also did 3 sprints which is 60 meters. No idea how far that is - but that's what Al said.
Charlotte said some of the people at gym were saying I look so good and walking so well. She said well it's probably because she's not carrying her heavy purse. My purse isn't heavy, it's what I have in it!!!! LOL - when I go for walks in my neighborhood - I take a lighter canvas bag and just carry my machine and camera (of course) and phone.
After gym, I went to the grocery store and got on more miles!!! Now I'll make some lunch and then I'm going to Charlotte's to take pictures of her flower garden.
It's my sister's birthday today. Happy Birthday Tina!!! (Like she ever reads this!)
See you next time!

Monday, June 29, 2009

It's my birthday!

Today was my 41st birthday. Went out to lunch with my Fargo family - had a 'mini' Super Burrito at Paradisio. It was very good, as usual. Then we hung out at my parents for a little bit. I went for a walk around the block. These blocks seemed longer, so we thought it was 2 1/2 blocks. I didn't have gym shoes on so my feet kind of were sore by the time I got to my parents, plus all the cracks in the sidewalks.. Good thing i didn't carry my camera, although i wish i had. I was tired after but blaming it on my shoes. I just needed to sit when I got in the house. My niece Abby went with but she was on her scooter and was farther ahead of me. I yelled for her a couple times and she stopped, waited for me, then proceeded on.

Not too much to report today. Another year has come and gone, and I look forward to what this next year will bring!
I'll be back in the gym tomorrow. Looking forward to see how many laps I can do.

Thursday, June 25, 2009

Kicking butt and feeling fine

Today started out as an adventure. I walked to the grocery store by my place to get more batteries for my camera. Surprise Surprise. On the way over I saw this big hammer in the grass. I figured it would be too heavy to carry w/ me and people might think I was a bit nutty for carrying a hammer, so I went and got my batteries and waited for my dad as he was going to take me to gym. I told him about the hammer and I said I know about where it is if you want to drop me off, I'll try to find it. So here I am in this big patch of green grass looking for this hammer. I thought I saw it a few times and ran for it, but no hammer. Long story short i did find it and brought it back to my dad. On the way to the car, i saw this guy coming towards me. i thought he was going to tell me it was his lost hammer. Anyway, this was much funnier to be seen in person. i should have had my dad take pictures.

I got to gym, did the rower and walked 4x around gym. I only sat twice for less than a minute. Then proceeded. Felt really good. i didn't time myself.

Then i sat down on the mat and did a few stretches and just kind of relaxed. Then Charlotte and i walked FIVE awesome is that and it took me 9 min 17 sec. Woo-hoo. Then she stretched me which was VERY relaxing! I still had time left so i said i think i'll walk another lap - well that ended up being FOUR more. I believe it took me 8 minutes. And this time I didn't sit once - just kept on moving. I did sit when i was done. Felt a little tired but now i feel super. Got lots of high-fives! It take 12 laps to make a mile and I did 13 - broken up!!!!
I think I will try to maintain this. I felt I could go more but I want to just take it slow. So far I'm very impressed by what I have done. I can't wait to see how I progress. It really is exciting.
Thank you everyone at Southpoint for your cheers and high-five. Makes me believe I can actually pull this off!!

Tuesday, June 23, 2009

Keep on Keepin' on!

Today was a good day and I'll admit I am proud of myself. I did the rower first, then I walked around the gym. I guess it takes 12 laps to equal 1 mile. I did about 3-4 w/ small breaks where I sat for 30 sec to 1 min. I then proceeded. By the end my walk was getting sloppy and I was feeling tired. I sat on a mat and did a few stretches for about 5-10 minutes. Charlotte said she had a few minutes and would walk a lap w/ me (although I think I used up her lunch time), well we walked 3 laps and I felt good, srong, had a steady even stride. Had no feeling where I needed to sit down. Which was sooooooooo impressive. In fact a couple of times I tried to race her! I don't know why but I felt like I did much better walking w/ someone - maybe it was the sense of security. It is more fun walking w/ someone. When I did it alone I stayed very focused, to the point I couldn't look at anyone. I know this is my first time and this is all new to me, but I was very impressed by what I accomplished. I don't feel overly exhausted now. I feel like I could walk to the grocery store. I just don't want to get rained on. Knowing my luck it would start to pour as soon as I left. It was pouring earlier.
I'm looking forward to gym Thursday. I want to try a lap again and see how many times i need to sit. Charlotte said she'd walk w/ me again before she stretches me (my favorite part!)!
So on goes my journey. Woo-hoo!! Keep on keeping on!
Thanks Charlotte for walking w/ me!!

Monday, June 22, 2009


This weekend at the lakes, I had my BIL Derrick help me set up the Pedometer. For some reason it was not working for me. He put in my stride and then I had to walk 100 steps and it should have calculated the 100 steps. Well, first I kept losing track while I was counting. So I asked Derrick if he'd walk with me and be my counter. It always came to some low number like 5. But when he walked the 100 steps, his came out fine. So I just played around with it. It's supposed to keep track of how far you walk for a week. I'm obviously doing something wrong. I'll check with the trainers tomorrow and see if they can figure it out. I'll try my walk around the gym and see how that goes.
Until then....

Thursday, June 18, 2009

It's gonna be a long journey

But I am ready for everything that is thrown at me. I visited w/ my trainer (Kendall) for a little bit and I asked where I can get one of those Pedometers so I have a better idea of how far I have walked. My sister called the other day asking what she can get me for my upcoming bday and I HATE that question. I couldn't think of anything but said I'd get back to her if I think of something. On the way to my Wed appointment, it dawned on me that I need a Pedometer. Kendall had an extra one and isn't sure how long it will last, but it should work for awhile. Thanks Kendall. Now I need to think of something for my sister to get me. hmmm!

Kendall said to keep walking and to try to increase it little by little. He suggested i walk around the gym. I think he said walking 3 laps comes to 1 mile. i'll have to work on this. This is all new to me so i will just do what I can and hopefully get stronger day-by-day. Charlotte - another trainer and my stretcher, showed me some exercises i can do to stregthen my balance and work on my leg endurance. So I'll try those next week. i'll have to ask her take pictures of me doing my walking/exercises to post on this site. Or maybe not!

I had an appointment this afternnon which i walked to again, (i had another appointment yesterday too) and walked home - this time it was raining when i was done. I was offered a ride but I was up for the challenge of walking in rain. It went fine - i even ran for a little bit - something i for sure need to work on. My ankles don't feel strong enough when i run.

So this will be a long slow process, but I know i can't push myself too hard or it could result in injury. i'll just see how i do and i am sure i'll have good days and bad days but i will keep up the fight.

i'm excited!

Thursday, June 4, 2009

June 4, 09

Hello everyone!
Well, today probably wasn't the best day for a walk as its super windy out. I think i went further than my last walk but not sure. I guess its good to walk in the wind in case its windy the day of the Marathon; which is highly likely. I took a couple minute breaks and sat down to take some photos - those who know me know i love photography! Then i got up and carried on my way. i am tired but I am sure its due to the strong winds. At least it wasn't pouring rain! Then I'd need my head examined for taking a walk in the pouring rain.
Have a great day.

Thursday, May 28, 2009

Thursday May 28, 09

Today is a new day. I did my normal gym routine. Went to an appointment and walked home - about 2 blocks. I made it in 10 min and probably would have been faster had I not stopped to look at the flowers. While at gym, i was visiting with another trainer, Brett, who has run the Marathon every year. He also encouraged me and suggested i take baby steps and try to walk further. We'll see how that goes. I felt fine after I got home. I'll have to venture out for a walk again soon.
until next time....

Wednesday, May 27, 2009

Wednesday May 27th, 2009

Hi! My name is Joanna but everyone calls me Joey.
I have never done a blog site, so am not sure if I'm doing this right. I was encouraged by Tammy from the Dystonia site to make a blog of my latest challenge I am planning to conquer.

I have always been fascinated by people who run the Marathon and this past May after we had the Fargo one, I got bit with the Marathon bug! It is so inspiring. I talked to my parents and a couple of people and they all had the same reaction 'that this would not be a good thing for me'. Due to me having Dystonia ( a neurological movement disorder), since the age of 10 -11; I wasn't diagnosed until nearly 18 years later. Ah-ha finally a name. I lived my life as best i could - I do have a speech impairment so i use a device called a Lightwriter. It has made my world a whole lot easier on the communication aspects.

I live alone, have several friends and I have family nearby. I enjoy having my own place and having that independance.

I no longer work, I did for awhile at odd and end type jobs - nothing really satisfying though. I do volunteer through where I comment on others photobooks they create. It has become a passion of mine as well as photography.

About 2 years ago I had severe physical problems. I'd be moving along fine, then all the sudden would have what i call as a 'lock-up'. My body would literally freeze up. It was so bizarre. Anyway, i asked my neurologist at the time to watch what happens when I stand in one place for a minute or so. She was amazed. i literally had to get to the floor; which was a task in itself. Then I'd scoot to a chair and be fine for the time being. She put me on a medication that has been my miracle drug. i still have troubles now and then but nothing as intense as before.

I went to the Mayo Clinic in Rochester, MN Feb of '08 and they determined that in addition to my Dystonia I have Orthostatic Tremors. When I read about that online - it fit what i was experiencing to a tee.

So this is why my family and friends are a bit concerned I even want to try this Marathon. They aren't being negative just being honest, and i respect that.

I kind of forgot about it (but not really) then I came across a Twitter from the Dystonia Foundation about Brian's story and how he is running the Chicago Marathon in October. I realize that every body is different, every person with Dystonia affects them different. But it still inspired me, if he can do it - perhaps I can too.

I talked to one of my trainers (Kendall) and he said he is the eternal optimist about this kind of stuff. He read Brian's story and like I said before, he also said Dystonia affects everyone different. i did have a concern about the big crowds; which i don't do well in. He said theres nothing that can be done about the crowds BUT we can put you at the back. I also think it would be 'easier' if I ran/walked with someone so in case i had trouble, i could grab their arm and run with them until i got out of the crowds. There were 5,000 people in the 5k alone. Kendall said we'll take baby steps. He emailed today and said he'll talk to his colleagues about this and where and when we should start. I'll just have to try and see how well i do.

I did talk to my doctor about this and she is fine with it as long as this is what I want. I want to show myself and others that this can be done.

Even if after all the training, I find I'm just not strong enough to do this, then at least I will have given it a shot. Maybe my story will inspire others - to believe in the impossible, to believe in yourself - then anything can be achieved.

i do go to the gym twice a week. i use the rower, and other weight machines - all are ones where I'm sitting down. Stretching is my favorite thing and best for my body. It does concern me how my body will do - but i won't know until i try, right.

I guess once I get writing I can't stop. I'll write more once my training has started. :)