Showing posts with label Twitter. Show all posts
Showing posts with label Twitter. Show all posts

Thursday, July 23, 2009

Maintaining

First I have to blog about yesterday. Yesterday was Dystonia Twitter Awareness Day - so if you were on Twitter you were asked to help spread the word about Dystonia which is a rare disorder that not many are aware of. I wasn't sure what to say. Then I saw all these 'tweets' (Twitter talk) coming in from people w/ Dystonia and if you typed in #dystonia in the search box, you'd see all kinds of responses. I was literally blown away! I knew people had it but I never knew how many. I have had this 31 years, so it is what it is. I just try to do my best and keep plugging along. I even changed my staus on Facebook to say if anyone is on Twitter and has questions about Dystonia to please Twitter and join in conversation. A couple people posted comments on my facebook wall asking what is Dystonia, one said she never knew they had a name for my condition. Then i got a message in my facebook inbox from someone asking how i know about Dystonia - she asked if I had it. Then said she too had it!!! So since I know this person we have a lot to talk about!! Our Dystonia's are different. It's so nice to connect w/ people who actually know something of what you are going through. Of course every person is different as is every person w/ Dystonia. I never heard much of anything about this rare disorder, thanks to Twitter we can spread the word!!

Today at gym I did a couple weight machines then started on my walking. My first lap I did 12 laps in 18 min - with some running inbetween. Then I got my wonderful stretch from Charlotte (thanks Charlotte) - very relaxing then I was ready to go at it again and this time I did TWELVE more in 17 40 min! So I did TWO miles again!!! woo-hoo!! I did pretty well for not feeling 100%!

So thats my news for the week. Enjoy your weekend. I appreciate all my new followers - some of you I met on Twitter. Thanks everyone for your support