First I have to blog about yesterday. Yesterday was Dystonia Twitter Awareness Day - so if you were on Twitter you were asked to help spread the word about Dystonia which is a rare disorder that not many are aware of. I wasn't sure what to say. Then I saw all these 'tweets' (Twitter talk) coming in from people w/ Dystonia and if you typed in #dystonia in the search box, you'd see all kinds of responses. I was literally blown away! I knew people had it but I never knew how many. I have had this 31 years, so it is what it is. I just try to do my best and keep plugging along. I even changed my staus on Facebook to say if anyone is on Twitter and has questions about Dystonia to please Twitter and join in conversation. A couple people posted comments on my facebook wall asking what is Dystonia, one said she never knew they had a name for my condition. Then i got a message in my facebook inbox from someone asking how i know about Dystonia - she asked if I had it. Then said she too had it!!! So since I know this person we have a lot to talk about!! Our Dystonia's are different. It's so nice to connect w/ people who actually know something of what you are going through. Of course every person is different as is every person w/ Dystonia. I never heard much of anything about this rare disorder, thanks to Twitter we can spread the word!!
Today at gym I did a couple weight machines then started on my walking. My first lap I did 12 laps in 18 min - with some running inbetween. Then I got my wonderful stretch from Charlotte (thanks Charlotte) - very relaxing then I was ready to go at it again and this time I did TWELVE more in 17 40 min! So I did TWO miles again!!! woo-hoo!! I did pretty well for not feeling 100%!
So thats my news for the week. Enjoy your weekend. I appreciate all my new followers - some of you I met on Twitter. Thanks everyone for your support
You've lived with dystonia for 31 years!?! Talk about an unwanted guest overstaying his welcome!
ReplyDeleteI have had it close to 20 years now (tough to say really because I probably had it since birth and being nervous brought it out it middle and high school and constant by my second year in college). So at least I got to go through a somewhat normal HS career.
Sorry, I missed the Dystonia Twitter yesterday. I was very busy and since I am barely computer literate enough to blog (I am not even on facebook yet, if you can believe that!). Soon hopefully.
Joey I am so proud of you!!!! I was so happy to finally see you again in the gym walking and RUNNING! :) Keep up the great work. I know you can accomplish anything you set your mind to!
ReplyDeleteTwo miles, way to go Joey!
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